The mission of Compassionate Access for Epilepsy Alabama is to support public policy that helps foster effective treatment, research, and cures for epilepsy. C.A.F.E. Alabama is working to provide a voice for many in Alabama with epilepsy who face challenges due to uncontrolled seizures where there are no treatment options. C.A.F.E. Alabama supports the limited use of cannabidiol oil in Alabama for the treatment of severe epilepsy as directed and guided by physicians.
Who we are.
This initiative was launched to support policy changes that will benefit patients and families, especially families with small children who have catastrophic forms of epilepsy. C.A.F.E. Alabama brings together Alabamians and other organizations that support the compassionate access and physician directed medical use of cannabidiol (CBD), a non-psychoactive component of cannabis, to treat epilepsy. Some epilepsy patients and especially very young children afflicted with life threatening forms of epilepsy benefit from the compassionate and medically directed use of CBD. CBD oil has shown effectiveness in animal studies, and patients in states where CBD oil is legal have reported positive results.
Why is this important?
Despite available treatments approximately one-third of people living with epilepsy suffer from uncontrolled or intractable seizures. Uncontrolled seizures can lead to disability, injury, and even death. People living with refractory seizures have reported beneficial effects and reduced seizure activity with the use of CBD oil. Access to CBD would be limited to cases where traditional treatment options have been unsuccessful. Alabamians, especially critically ill children who are at risk of death or brain damage due to seizures, should have access to this promising treatment option, especially if the patient, the family and the doctor led medical team believe that this treatment may limit the possibility of severe consequences including death and major disability. Existing treatments have real side-effects, both known and unknown, and, just as there are risks with any treatment, every day without seizure control is a risk to life. With every seizure the opportunity to grow, learn and live is jeopardized.
The Alabama Legislature Must Take Action to Help Epilepsy Patients.
C.A.F.E. Alabama believes that CBD oil should be an important ray of hope for those who have not found success with current treatments. C.A.F.E. Alabama will continue to work with the legislature until Alabamians have legal, safe, and consistently accessible CBD oil with the production of CBD oil approved for manufacture in Alabama. Safe and comprehensive legislation is our top priority and the best way for Alabamians to get access to this important treatment. We urge all groups and individuals to join our coalition and donate to this important cause.
Support C.A.F.E. Alabama.
Your donation will help C.A.F.E. Alabama to support public policy that helps foster effective treatment, research, and cures for epilepsy. C.A.F.E. Alabama is working to provide a voice for many in Alabama with epilepsy who face challenges due to uncontrolled seizures where there are no treatment options. Thank you for supporting this vital mission.
HB-61 Rep. Mike Ball along with over 30 fellow Alabama Representatives have put forth a bill to loosen the restrictions on CBD Oil that has been found effective in treatment for some epilepsy types. This bill is known as Leni’s Law, named after Leni Young. This 4 year old began having seizures at 7 months. The CBD oil her parents received in Oregon, where it is legal, worked so well for Leni they were willing to relocate from Alabama to Oregon.
Although the CBD oil treatment worked for Leni does not mean it will be the panacea those that suffer with seizures but it may help those that conventional seizure drugs are ineffective.
Thank you! Governor Bentley signed into law “Leni’s Law” effective June 1, 2016. We salute Rep. Mike Ball for having the courage and conviction to bring Leni’s Law before legislation. Without your calls, emails and letters this law may not have passed. There is still a long way to go to make safe CBD Oil available to persons with epilepsy but the first step has been taken. Consider making a donation to the Epilepsy Foundation of Alabama to help us further this cause.
The Alabama Epilepsy Foundation believes in Compassionate Access For Epilepsy that calls for public policy changes that will support limited use of CBD oil in Alabama for the treatment of severe epilepsy as directed and guided by physicians and state guidelines. We would also like to see state regulated cultivation and production. CBD oil is especially effective in the treatment of Dravet Syndrome as well as treating the 20% – 30% of those persons suffering with epilepsy and seizures that do not respond to any medication or surgery. Imagine that if some of these people with epilepsy can use CBD oil to control their seizures they would be able to become productive citizens and pay into a system that has been supporting them for years. Babies and children that have constant seizures will eventually suffer various forms of paralysis and mental impairment. These children will be a burden to the Alabama tax payers for the rest of their lives. There is a huge economic incentive to the state of Alabama to allow CBD oil readily available through licensed physicians.
We understand that CBD oil is not the panacea for all seizures for all people, but for the 20%+ that do not respond to current seizure medications this could be a miracle for them and their care givers. We ask for compassion for the children of Alabama.
FDA Issues Warnings on Some CBD Companies: The Food and Drug Administration (FDA) has issued several warning letters to companies that have inappropriately marketed products containing cannabidiol (CBD). Many of these companies have misrepresented the current science on CBD and all of the products contain little to no CBD. You can view the list of companies that were issued warnings at http://www.fda.gov/NewsEvents/PublicHealthFocus/ucm435591.htm. These warnings reinforce our calls for safe and legal medical cannabis programs in the states and additional research and testing on cannabis products.